During Rare Disease Week (Feb 23-29), dine in or take out at Machu Picchu Restaurant in Somerville. Mention “Lukie” to donate 5% of your bill to fund ZTTK research!
Last year, Baby Lukie was diagnosed with a very rare disease called ZTTK, discovered only in 2016. There are no known cures or treatments.
At 18 months, Lukie is tube-fed and has not crawled, walked, or talked. He is also at high risk for seizures, and little is known about how the disease will progress.
Lukie’s parents Ada and Nathan are racing against the clock to work with world-class scientists to develop a cure for Lukie and other ZTTK patients.
See more event details here.
Celebrate Union’s character, meet more neighbors, and help make local businesses’ registers sing! For more details, follow us on social. See you in the Square!
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Earlier Event: February 22
Winter Haiku Workshop
Later Event: February 23
The True Cost of Coal with The Beehive Collective